Top 20 Ataxia RSS Feeds

1. Ataxia UK News RSS Feed

RSS Feed ataxia.org.uk/feed   Follow RSS Blog ataxia.org.uk
The Ataxia UK Latest News blog provides updates and insights on the latest developments, research, and events related to ataxia, a group of neurological disorders. The blog covers a wide array of topics, including new genetic discoveries, personal stories from those affected by ataxia, and advancements in treatment and therapy. It features contributions from medical professionals and researchers, highlighting significant findings and their implications for patients. Additionally, the blog keeps readers informed about upcoming webinars, fundraising events, and community activities, fostering a supportive network for individuals and families impacted by ataxia.
Facebook Followers 8.4KTwitter Followers 4.6KInstagram Followers 2.9K Frequency 5 posts / month Export RSS feeds list Get access to 250k active RSS feeds of news websites, blogs, magazines and podcasts with email contacts in 1500 niche categories. Get targeted RSS list in your niche at your fingertips. Email us the categories of RSS feeds you're interested in at anuj@feedspot.com Copy email. We'll share the list in an Excel spreadsheet or CSV format.Email us Export RSS List

2. Friedreich's Ataxia Research Alliance RSS Feed

RSS Feed curefa.org/scientific-news?f..   Follow RSS Blog curefa.org/posts
The Friedreich's Ataxia Research Alliance (FARA) blog offers an insightful and engaging collection of posts dedicated to the Friedreich's Ataxia (FA) community. It features updates on the latest research, profiles of community members, advocacy efforts, and upcoming events. Through a blend of personal stories and scientific developments, the blog serves as a vital resource for those affected by FA, their families, researchers, and advocates. It fosters a sense of community while keeping readers informed about significant advancements and opportunities for involvement in the fight against FA.
Facebook Followers 13.5KTwitter Followers 2.6K Frequency 30 posts / year

3. Friedreich's Ataxia News RSS Feed

RSS Feed friedreichsataxianews.com/feed   Follow RSS Blog friedreichsataxianews.com
Friedreich's Ataxia News is a digital platform dedicated to providing the latest news, research updates, and personal stories related to Friedreich's ataxia (FA). Authored by a team of science writers and editors, many with PhDs in life sciences, the blog covers various aspects of FA, including treatment options, patient experiences, and expert interviews. The editorial team, led by Senior Vice President Kellie Benn and Director of Science Content Patricia Silva, ensures high-quality, accurate, and engaging content aimed at educating and supporting the FA community.
Facebook Followers 3.1K Frequency 2 posts / week

4. Nature » Spinocerebellar Ataxia RSS Feed

RSS Feed nature.com/subjects/spinocer..   Follow RSS Blog nature.com
The Nature Portfolio blog on spinocerebellar ataxia offers comprehensive insights into the latest research and developments regarding this group of genetic disorders affecting the spine and cerebellum. As part of the esteemed Nature Portfolio, the blog is curated by an expert editorial team, including Editor-in-Chief Magdalena Skipper, ensuring high-quality, peer-reviewed content. The blog highlights groundbreaking studies, clinical trials, and advancements in understanding and treating spinocerebellar ataxia, making it an invaluable resource for researchers and healthcare professionals.
Facebook Followers 506KTwitter Followers 2.6MInstagram Followers 845 Frequency 5 posts / quarter

5. Action for A-T RSS Feed

RSS Feed actionforat.org/feed   Follow RSS Blog actionforat.org
Action for A-T is a charity that was set up by two parents following their daughter being diagnosed with a rare genetic disorder called Ataxia-Telangiectasia (A-T). Raising money for medical research for Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.
Facebook Followers 3.5KTwitter Followers 1.1KInstagram Followers 719 Frequency 2 posts / month

6. Friedreich Ataxia Scientific News RSS Feed

RSS Feed blogger.com/feeds/7317849712..   Follow RSS Blog friedreichscientificnews.blogspot.com
The Friedreich Ataxia Scientific News blog, authored by Juan Carlos Baiges, provides updates on the latest scientific research related to Friedreich's Ataxia and other rare diseases. Juan Carlos, with a background in pharmacy and computer science, shares detailed analyses and summaries of new studies, case reports, and advancements in treatment approaches. The blog aims to inform and connect the scientific community and those affected by these conditions.
Facebook Followers 546Twitter Followers 74 Frequency 2 posts / week Since Dec

7. FARA Blog RSS Feed

RSS Feed fara.org.au/news?format=rss   Follow RSS Blog fara.org.au/news
The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.
Facebook Followers 1.4KInstagram Followers 1.4K Frequency 1 post / quarter

8. National Ataxia Foundation Blog RSS Feed

RSS Feed ataxia.org/feed   Follow RSS Blog ataxia.org/blog
The National Ataxia Foundation (NAF) blog provides a wealth of information on ataxia, a rare neurological disease. Authored by experts from NAF, including CEO Andrew Rosen and VP of Research Dr. Lauren Moore, the blog offers insights into research developments, patient stories, and support resources. The NAF, established in 1957, is dedicated to accelerating treatments and improving the lives of those affected by ataxia through research funding and educational programs.
Facebook Followers 11.5KTwitter Followers 2.9KInstagram Followers 2.1K Frequency 4 posts / month

9. Fara NZ Blog RSS Feed

RSS Feed fara.org.nz/blog?format=rss   Follow RSS Blog fara.org.nz/blog
The Friedreich Ataxia Research Association (FARA) NZ blog shares updates on research, events, and personal stories related to Friedreich Ataxia (FA). The blog is curated by a dedicated team of advocates and researchers, including Dianne Boon, the chairperson of FARA NZ. The organization focuses on improving the quality of life for individuals with FA through advocacy, support, and funding research. The blog covers topics such as new research opportunities, patient forums, and community events.
Facebook Followers 314 Frequency 1 post / year

10. Retrospective Lily Blog RSS Feed

RSS Feed retrospectivelily.com/catego..   Follow RSS Blog retrospectivelily.wordpress.com
The Retrospective Lily blog, authored by Lily Pierce, offers heartfelt reflections on life, disability, faith, and personal growth. With an English degree and living with Friedreich's Ataxia, Lily shares her journey through thoughtful essays, poetry, and practical advice, aiming to inspire others with her resilience and positivity. The blog touches on various themes including disability awareness, spirituality, literature, and everyday experiences, providing a rich, relatable perspective on navigating life's challenges with grace and optimism.
Facebook Followers 128 Frequency 1 post / month

11. The Life of Riley's RSS Feed

RSS Feed lifeofrileys.org/feed   Follow RSS Blog lifeofrileys.org
The blog The Life of Riley's documents the family's journey with Friedreich's Ataxia, a rare genetic disorder. Authored by the Riley family, the blog offers a candid look into their daily lives, challenges, and triumphs. The writing is engaging and often humorous, providing a mix of personal stories and insights into managing life with a chronic condition. The blog serves as a source of support and community for others facing similar challenges.
Facebook Followers 484 Frequency 2 posts / year

12. Team Kendall Blog RSS Feed

RSS Feed teamkendall.org/blog-feed.xml   Follow RSS Blog teamkendall.org
The Team Kendall blog provides personal insights and stories related to living with Friedreich's Ataxia (FA), authored by Kendall, a dedicated advocate and freelance columnist for Friedreich's Ataxia News. The blog shares her experiences, challenges, and triumphs in managing FA, aiming to raise awareness and offer support to others affected by the condition. Kendall's candid reflections and informative posts help build a supportive community around FA.
Facebook Followers 336Twitter Followers 23Instagram Followers 581

13. National Ataxia Foundation Blog RSS Feed

RSS Feed ataxia.org/blog/feed   Follow RSS Blog ataxia.org/blog
The National Ataxia Foundation (NAF) blog provides vital information and support for individuals affected by ataxia, a rare neurological disorder. The blog is curated by NAF, an organization founded in 1957 with a mission to accelerate the development of treatments and a cure for ataxia. Under the leadership of CEO Andrew Rosen and a dedicated team, the blog offers research updates, personal stories, and resources to enhance the lives of those living with ataxia. Contributions from experts like Dr. Lauren Moore, Chief Scientific Officer, enrich the content with professional insights.
Facebook Followers 10.4KTwitter Followers 2.9K

14. Hope For Ataxia Blog RSS Feed

RSS Feed hopeforataxia.org/feed   Follow RSS Blog hopeforataxia.org
The Hope for Ataxia blog, led by a dedicated team, raises awareness about ataxia and provides support to those affected by the condition. The blog features personal stories, medical insights, and community profiles, aiming to foster a sense of connection and hope among readers. It highlights experiences from individuals living with different forms of ataxia and discusses advancements in treatment and care. Hope for Ataxia's mission is to educate the public, support patients and their families, and promote research.
Facebook Followers 2.1KTwitter Followers 62

15. Friedreich Ataxia Network RSS Feed

RSS Feed fan.asn.au/?feed=rss2   Follow RSS Blog fan.asn.au
The Friedreich Ataxia Network (FAN) blog offers support, information, and community stories for individuals affected by Friedreich Ataxia (FA). Authored by members of the FA community and managed by a dedicated team, the blog addresses living with FA, managing symptoms, and the latest research developments. Contributors include Jamie-Lee (FAer) and Karen (NDIS tips). FAN, based in Queensland, focuses on enhancing the quality of life for FA patients through education, advocacy, and social connections.
Twitter Followers 382

16. Ataxia & Me RSS Feed

RSS Feed ataxia-and-me.org/feed   Follow RSS Blog ataxia-and-me.org
Read real stories from real people with Ataxia. If you are affected by Ataxia, whether as a patient, family member, carer, relative, Healthcare professional, or friend, join us on this adventure of Ataxia awareness and communication. Ataxia and Me is a non-profit organisation helping to maximise the patient voice within the medical, health, and pharma community.
Facebook Followers 1.3KTwitter Followers 3.9KInstagram Followers 1.4K Frequency 5 posts / year