Top 60 Cystic Fibrosis RSS Feeds

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The best Cystic Fibrosis rss feed list curated from thousands of rss feeds on the web and ranked by relevancy, authority, social media followers & freshness.

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Cystic Fibrosis RSS Feeds

Here are 60 Best Cystic Fibrosis RSS Feeds you should follow in 2024

1. Cystic Fibrosis News Today RSS Feed

RSS Feed cysticfibrosisnewstoday.com/.. Follow RSS Blog cysticfibrosisnewstoday.com
Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.
Facebook Followers 22.7KTwitter Followers 4.3KInstagram Followers 9K Frequency 2 posts / day Since Apr 2014 Export RSS feeds list Get access to 250k active RSS feeds of news websites, blogs, magazines and podcasts with email contacts in 1500 niche categories. Get targeted RSS list in your niche at your fingertips. Email us the categories of RSS feeds you're interested in at anuj@feedspot.com Copy email. We'll share the list in an Excel spreadsheet or CSV format.Email us Export RSS List

2. CF Roundtable A Newsletter for Adults with Cystic Fibrosis RSS Feed

RSS Feed cfroundtable.com/blog-feed.xml Follow RSS Blog cfroundtable.com
The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.
Facebook Followers 2.3KTwitter Followers 806 Frequency 1 post / month Since Mar 2011

3. Cystic Fibrosis community RSS Feed

RSS Feed cysticfibrosis.com/feed Follow RSS Blog cysticfibrosis.com
A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.
Facebook Followers 233.8KTwitter Followers 29.8K Frequency 7 posts / year

4. Cystic Fibrosis Canada RSS Feed

RSS Feed cysticfibrosis.ca/blog/feed Follow RSS Blog cysticfibrosis.ca
Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.
Facebook Followers 19.2KTwitter Followers 5.7KInstagram Followers 6.7K Frequency 10 posts / quarter Since Apr 2016

5. Journal of Cystic Fibrosis RSS Feed

RSS Feed cysticfibrosisjournal.com/cu.. Follow RSS Blog cysticfibrosisjournal.com
The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.
Frequency 7 posts / month

6. Emily's Entourage Blog RSS Feed

RSS Feed emilysentourage.org/feed Follow RSS Blog emilysentourage.org
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.
Facebook Followers 9.4KTwitter Followers 2K Frequency 7 posts / quarter

7. Living life breathlessly RSS Feed

RSS Feed livinglifebreathlessly.blogs.. Follow RSS Blog livinglifebreathlessly.blogspot.com
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Twitter Followers 265 Frequency 2 posts / quarter Since Dec 2007

8. Cystic Fibrosis New Zealand | Creating Better Tomorrows RSS Feed

RSS Feed Follow RSS Blog cfnz.org.nz
Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.
Facebook Followers 5.5K Frequency 1 post / week

9. Continent Chasers RSS Feed

RSS Feed continentchasers.com/feed Follow RSS Blog continentchasers.com
Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.
Facebook Followers 2KTwitter Followers 1.9KInstagram Followers 1.5K Frequency 2 posts / month

10. Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis RSS Feed

RSS Feed breathinisbelievin.org/feed Follow RSS Blog breathinisbelievin.org
The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.
Facebook Followers 2.1KTwitter Followers 7 Frequency 1 post / day

11. CF Stinks RSS Feed

RSS Feed cfstinks.com/feeds/posts/def.. Follow RSS Blog cfstinks.com
Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind.
Facebook Followers 210 Frequency 1 post / week Since Dec 2010

12. JAMIEBUG CF CEPACIA LUNG TRANSPLANT RSS Feed

RSS Feed jamiebug.blogspot.com/feeds/.. Follow RSS Blog jamiebug.blogspot.com
Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung transplant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day.
Facebook Followers 96Twitter Followers 39 Frequency 1 post / month Since Oct 2007

13. Cat Boogies Dream | L Word RSS Feed

RSS Feed catboogiesdream.blogspot.com.. Follow RSS Blog catboogiesdream.blogspot.com
I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant patient with cystic fibrosis.
Frequency 3 posts / year Since Mar 2010

14. CF Happens RSS Feed

RSS Feed cfhappens.com/feed Follow RSS Blog cfhappens.com
I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
Twitter Followers 32 Frequency 2 posts / month Since Oct 2013

15. Bright Hope RSS Feed

RSS Feed bvbrighthope.wordpress.com/feed Follow RSS Blog bvbrighthope.wordpress.com
Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!
Frequency 4 posts / year Since Apr 2014

16. Breathe Bravely RSS Feed

RSS Feed breathebravely.blogspot.com/.. Follow RSS Blog breathebravely.blogspot.com
A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF. Dedicated to sharing my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.
Twitter Followers 239 Frequency 1 post / quarter Since Apr 2014

17. The Frey Life RSS Feed

RSS Feed youtube.com/feeds/videos... Follow RSS Blog youtube.com
We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glimpse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!
Facebook Followers 112.1KTwitter Followers 7.6K Frequency 2 posts / quarter Since Mar 2014

18. Cystic Fibrosis Trust RSS Feed

RSS Feed youtube.com/feeds/videos... Follow RSS Blog youtube.com
The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life.
Facebook Followers 88.5KTwitter Followers 27.5K Frequency 1 post / week Since Oct 2008

19. Cystic Fibrosis Federation Australia RSS Feed

RSS Feed cysticfibrosis.org.au/all/bl.. Follow RSS Blog cysticfibrosis.org.au
Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.
Facebook Followers 10.2K

20. Bennett Brinson Gamel: Fighting Cystic Fibrosis RSS Feed

RSS Feed initforbennett.com/feeds/pos.. Follow RSS Blog initforbennett.com
Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage.
Twitter Followers 992 Since Jul 2008

21. Claire's Place Foundation RSS Feed

RSS Feed clairesplacefoundation.org/b.. Follow RSS Blog clairesplacefoundation.org
Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.
Facebook Followers 31.5KTwitter Followers 26.1KInstagram Followers 92.3K Since Jul 2011

22. Cystic Fibrosis Foundation | CF community Blog RSS Feed

RSS Feed cff.org/RssFeed.aspx?blogid=532 Follow RSS Blog cff.org/Blog
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.
Facebook Followers 233.8KTwitter Followers 31KInstagram Followers 61K

23. Tales of Citrus and Salt RSS Feed

RSS Feed teamddoes.blogspot.com/feeds.. Follow RSS Blog teamddoes.blogspot.com
When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child with CF.
Since Aug 2013

24. IV Solutions blogs RSS Feed

RSS Feed ivsolutions.com/blog/feed Follow RSS Blog ivsolutions.com
IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.
Facebook Followers 1.8KTwitter Followers 205 Since Dec 2015

25. With Every Breath: My Life with Cystic Fibrosis RSS Feed

RSS Feed livewitheverybreath.wordpres.. Follow RSS Blog livewitheverybreath.wordpress.com
Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan.
Since Oct 2013

26. Love to Breathe RSS Feed

RSS Feed lovetobreathe.blogspot.com/f.. Follow RSS Blog lovetobreathe.blogspot.com
Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
Facebook Followers 10.2KTwitter Followers 1.7KInstagram Followers 13.3K Since Mar 2008

27. Behind the Smile of a Cystic RSS Feed

RSS Feed behindthesmileofacystic.blog.. Follow RSS Blog behindthesmileofacystic.blogspot.com
My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down!
Twitter Followers 204 Since Jan 2012

28. Cystic Fibrosis Kids RSS Feed

RSS Feed cfkids.org.uk/feed Follow RSS Blog cfkids.org.uk
CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.
Facebook Followers 1.5KInstagram Followers 265

29. More Than DNA DNA doesn't define our family RSS Feed

RSS Feed morethandna.org/feed Follow RSS Blog morethandna.org
Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF!
Facebook Followers 1.2K

30. Past the Point of No Return RSS Feed

RSS Feed tor-pastthepointofnoreturn.b.. Follow RSS Blog tor-pastthepointofnoreturn.blogspot.com
A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.
Twitter Followers 3.7K Since May 2005

31. 66 roses RSS Feed

RSS Feed 66roses.blogspot.com/feeds/p.. Follow RSS Blog 66roses.blogspot.com
Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.
Facebook Followers 391Twitter Followers 2.3K Since May 2010

32. The Sprog's Life RSS Feed

RSS Feed thesprogslife.com/feeds/post.. Follow RSS Blog thesprogslife.com
Blog by George. I started this blog back in January 2012. At first i didnt want this to be a public blog, just some where i could write my thoughts and feelings, sort of a diary and journey through my time getting on and waiting on the transplant list.
Twitter Followers 1K Since Jan 2012

33. The So What Life RSS Feed

RSS Feed thesowhatlife.com/blog/feed Follow RSS Blog thesowhatlife.com
A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fibrosis.
Facebook Followers 1.3K

34. Tim Wotton | Counting up to 50 RSS Feed

RSS Feed timwotton.wordpress.com/feed Follow RSS Blog timwotton.wordpress.com
Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting down to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.
Twitter Followers 877 Frequency 1 post / month Since Jan 2011

35. The Living, Breathing Wendy RSS Feed

RSS Feed thelivingbreathingwendy.com/.. Follow RSS Blog thelivingbreathingwendy.com
A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
Facebook Followers 423Twitter Followers 332 Since Mar 2015

36. Every Breath Means Hope RSS Feed

RSS Feed everybreathmeanshope.blogspo.. Follow RSS Blog everybreathmeanshope.blogspot.com
This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
Twitter Followers 285 Since Sep 2012

37. Lucky CF Mom | Possibilities RSS Feed

RSS Feed luckycfmom.blogspot.com/feed.. Follow RSS Blog luckycfmom.blogspot.com
I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibrosis. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!
Twitter Followers 465 Since Feb 2011

38. I dream of Daisy RSS Feed

RSS Feed dream-of-daisy.blogspot.com/.. Follow RSS Blog dream-of-daisy.blogspot.com
Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.
Facebook Followers 217Twitter Followers 61Instagram Followers 146 Since Jun 2013

39. Cystic Fibrosis Guernsey RSS Feed

RSS Feed cysticfibrosis.org.gg/feed Follow RSS Blog cysticfibrosis.org.gg
Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surrounding CF have little or no way of sharing there ups and downs, their problems, we should help each other.
Facebook Followers 178Twitter Followers 153

40. But You Look So Well RSS Feed

RSS Feed butyoulooksowell.com/feed Follow RSS Blog butyoulooksowell.com
Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing about herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.
Instagram Followers 1.6K Frequency 1 post / year Since May 2019

41. The Transplanted Dad RSS Feed

RSS Feed transplanteddad.blogspot.com.. Follow RSS Blog transplanteddad.blogspot.com
My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new direction it's headed in following my double lung transplant
Facebook Followers 129 Since Apr 2015

42. One Breath at a Time - Living with Cystic Fibrosis RSS Feed

RSS Feed kayla-onebreath.blogspot.com.. Follow RSS Blog kayla-onebreath.blogspot.com
A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog is to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is.
Since Jan 2011

43. Michael Goodwin Sailing RSS Feed

RSS Feed michaelgoodwinsailing.blogsp.. Follow RSS Blog michaelgoodwinsailing.blogspot.com
Hello, and welcome to my occasional blog about sailing adventures with friends. I aim to raise funds for the Cystic Fibrosis Trust through sponsorship, so please consider making a donation to the trust via the link on this website to help us to beat this dreadful disease that limits the lives of so many young people. I do hope you enjoy reading my blog.
Twitter Followers 16

44. SaltySouthpaw.com RSS Feed

RSS Feed saltysouthpaw.com/feeds/post.. Follow RSS Blog saltysouthpaw.com
Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick mucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.
Twitter Followers 11 Since May 2005

45. TheraPink RSS Feed

RSS Feed therapink.wordpress.com/feed Follow RSS Blog therapink.wordpress.com
I created this blog to raise awareness about CF through sharing my personal experiences and perspective. I hope to dispel some of the myths and provide a basic education on my experiences with Cystic Fibrosis. Blog by Therapink.
Twitter Followers 1 Frequency 1 post / month Since Jan 2013

46. Illness Inspired Words RSS Feed

RSS Feed illnessinspiredwords.blogspo.. Follow RSS Blog illnessinspiredwords.blogspot.com
The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together unless we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate.
Since Jul 2009

47. The Journey of Faith RSS Feed

RSS Feed heleadsus.wordpress.com/feed Follow RSS Blog heleadsus.wordpress.com
Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with the fact that they have a child with CF. You will read about the fun and happy times as well as trying times.
Since Feb 2010

48. The Unknown Cystic RSS Feed

RSS Feed unknowncystic.com/feed Follow RSS Blog unknowncystic.com
Leaving a digital record for my family & virtual friends.
Twitter Followers 1.1K Since Feb 2010

49. Inspire; to breathe RSS Feed

RSS Feed suzannebrandsen.wordpress.co.. Follow RSS Blog suzannebrandsen.wordpress.com
Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics are more interesting than they sound.
Instagram Followers 588 Frequency 1 post / month Since Jul 2010

50. Two Salty Boys RSS Feed

RSS Feed twosaltyboys.blogspot.com/fe.. Follow RSS Blog twosaltyboys.blogspot.com
Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.
Since Nov 2010

51. LiveLaughLoveBreathe* RSS Feed

RSS Feed howilivelaughlovewithcf.blog.. Follow RSS Blog howilivelaughlovewithcf.blogspot.com
Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
Since Jan 2011

52. Inhaling Hope RSS Feed

RSS Feed hopefulwithcf.blogspot.com/f.. Follow RSS Blog hopefulwithcf.blogspot.com
A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one thing that increases her challenges to these things. She has CF.
Since Mar 2011

53. Blue-Eyed Breather RSS Feed

RSS Feed blue-eyedbreather.blogspot.c.. Follow RSS Blog blue-eyedbreather.blogspot.com
Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and about her walk with God.
Since Jan 2012

54. Joyfully Breathing RSS Feed

RSS Feed joyfullybreathing.wordpress... Follow RSS Blog joyfullybreathing.wordpress.com
A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibrosis patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life.
Since Nov 2013

55. The Race Marked Out For Me | Running with Purpose RSS Feed

RSS Feed theracemarkedoutforme.com/?f.. Follow RSS Blog theracemarkedoutforme.com
I want to write about my cf journey for a bunch of reasons to Connect, Share, Spread awareness and educate, Importance of Exercise, Inspire and encourage, Thankfulness. Embracing life's journey with cystic fibrosis.
Since Mar 2015