Top 70 Cystic Fibrosis RSS Feeds

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The best Cystic Fibrosis rss feed list curated from thousands of rss feeds on the web and ranked by traffic, social media followers & freshness.Learn more

Cystic Fibrosis RSS Feeds

Here are 70 Best Cystic Fibrosis RSS Feeds you should follow in 2024

1. Cystic Fibrosis News Today RSS Feed

Cystic Fibrosis News Today Pensacola, Florida, US   Follow RSS
Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosi...s news and articles. Stay informed about approved therapies, new medications and developments to treat CF.more
22.7K 5.2K 9.1K 2 posts / day Apr 2014

2. CF Roundtable A Newsletter for Adults with Cystic Fibrosis RSS Feed

CF Roundtable A Newsletter for Adults with Cystic Fibrosis US   Follow RSS
The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the l...atest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.more
2.3K 971 1 post / month Mar 2011

3. Cystic Fibrosis community RSS Feed

Cystic Fibrosis community Bethesda, Maryland, US   Follow RSS
A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cysti...c fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.more
233.8K 31.4K 7 posts / year

4. Cystic Fibrosis Canada RSS Feed

Cystic Fibrosis Canada Toronto, Ontario, Canada   Follow RSS
Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in lif...e-saving CF research and care than any other non-governmental agency in Canada.more
19.2K 6.4K 6.6K 10 posts / quarter Apr 2016

5. Journal of Cystic Fibrosis RSS Feed

Journal of Cystic Fibrosis   Follow RSS
The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and t...reatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis. more
7 posts / month

6. Emily's Entourage Blog RSS Feed

Emily's Entourage Blog Philadelphia, Pennsylvania, US   Follow RSS
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic dis...order that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.more
9.4K 2K 7 posts / quarter

7. Living life breathlessly RSS Feed

Living life breathlessly Johannesburg, Gauteng, South Africa
livinglifebreathlessly.blogs..   Follow RSS
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
1 2 posts / quarter Dec 2007

8. Cystic Fibrosis New Zealand | Creating Better Tomorrows RSS Feed

Cystic Fibrosis New Zealand | Creating Better Tomorrows New Zealand
  Follow RSS
Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have t...he condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.more
5.5K 1 post / week

9. Continent Chasers RSS Feed

Continent Chasers Ireland   Follow RSS
Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the pl...anet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.more
2K 1.8K 1.5K 2 posts / week

10. Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis RSS Feed

Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis Bozeman, Montana, US   Follow RSS
The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting c...ommunities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.more
2.1K 7 1 post / day

11. Tim Wotton | Counting up to 50 RSS Feed

Tim Wotton | Counting up to 50 London, England, UK   Follow RSS
Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting do...wn to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.more
881 1 post / month Jan 2011

12. CF Stinks RSS Feed

CF Stinks US   Follow RSS
Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that cr...osses my mind. more
210 1 post / week Dec 2010

13. TheraPink RSS Feed

TheraPink US   Follow RSS
I created this blog to raise awareness about CF through sharing my personal experiences and perspective. I hope to dispel some of the myths and provid...e a basic education on my experiences with Cystic Fibrosis. Blog by Therapink.more
1 1 post / month Jan 2013

14. Inspire; to breathe RSS Feed

Inspire; to breathe   Follow RSS
Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics ...are more interesting than they sound.more
588 1 post / month Jul 2010

15. CF Happens RSS Feed

CF Happens Maryville, Tennessee, US   Follow RSS
I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
32 2 posts / month Oct 2013

16. Bright Hope RSS Feed

Bright Hope   Follow RSS
Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and... friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!more
4 posts / year Apr 2014

17. Breathe Bravely RSS Feed

Breathe Bravely Sioux Falls, South Dakota, US   Follow RSS
A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF. Dedicated to s...haring my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.more
234 1 post / quarter Apr 2014

18. The Frey Life RSS Feed

The Frey Life Boston, Massachusetts, US   Follow RSS
We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glim...pse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!more
112.1K 7.1K 2 posts / quarter Mar 2014

19. Cystic Fibrosis Trust RSS Feed

Cystic Fibrosis Trust UK   Follow RSS
The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the ...condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life. more
88.5K 27.8K 1 post / week Oct 2008

20. Cystic Fibrosis Federation Australia RSS Feed

Cystic Fibrosis Federation Australia Sydney, New South Wales, Australia   Follow RSS
Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks..., the effects and how to best live your life.more

21. Bennett Brinson Gamel: Fighting Cystic Fibrosis RSS Feed

Bennett Brinson Gamel: Fighting Cystic Fibrosis Texas, US   Follow RSS
Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs an...d pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage.more
977 Jul 2008

22. Claire's Place Foundation RSS Feed

Claire's Place Foundation California, US   Follow RSS
Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission... is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.more
31.5K 21.5K 71.8K Jul 2011

23. Cystic Fibrosis Foundation | CF community Blog RSS Feed

Cystic Fibrosis Foundation | CF community Blog Bethesda, Maryland, US   Follow RSS
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling li...ves by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.more
233.8K 31.4K 59.6K

24. Tales of Citrus and Salt RSS Feed

Tales of Citrus and Salt   Follow RSS
When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child wit...h CF. more
Aug 2013

25. IV Solutions blogs RSS Feed

IV Solutions blogs US   Follow RSS
IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF med...ications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.more
1.8K 16 Dec 2015

26. With Every Breath: My Life with Cystic Fibrosis RSS Feed

With Every Breath: My Life with Cystic Fibrosis US
livewitheverybreath.wordpres..   Follow RSS
Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it... comforting to see they aren't alone. Blog by jordan.more
Oct 2013

27. Stanley's Journey Get it off your chest CF RSS Feed

Stanley's Journey Get it off your chest CF Leicester, England, UK   Follow RSS
Stanley-Ray was diagnosed with cystic fibrosis at 20 days old, this facebook page is to keep people updated on his progress & to raise funds for CF tr...ust.more
815 349 271 Sep 2016

28. Love to Breathe RSS Feed

Love to Breathe US   Follow RSS
Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change ...the world... Join my fight! more
10.2K 1.6K 13.3K Mar 2008

29. Behind the Smile of a Cystic RSS Feed

Behind the Smile of a Cystic   Follow RSS
My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down! more
191 Jan 2012

30. Cystic Fibrosis Kids RSS Feed

Cystic Fibrosis Kids Portsmouth, England, UK   Follow RSS
CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available ...because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas. more
1.5K 257

31. More Than DNA DNA doesn't define our family RSS Feed

More Than DNA DNA doesn't define our family Peoria, Illinois, US   Follow RSS
Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF!

32. Past the Point of No Return RSS Feed

Past the Point of No Return tor-pastthepointofnoreturn.b..   Follow RSS
A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung... transplant and finally recieved the gift of life 10.10.11! All views my own.more
3.6K May 2005

33. 66 roses RSS Feed

66 roses Hershey, Pennsylvania, US   Follow RSS
Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thought...s. This blog, 66 Roses, is dedicated to finding the cure. more
391 2.3K May 2010

34. The Sprog's Life RSS Feed

The Sprog's Life Cobham, England, UK   Follow RSS
Blog by George. I started this blog back in January 2012. At first i didnt want this to be a public blog, just some where i could write my thoughts an...d feelings, sort of a diary and journey through my time getting on and waiting on the transplant list.more
986 Jan 2012

35. The So What Life RSS Feed

The So What Life US   Follow RSS
A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fib...rosis.more

36. This is Eli RSS Feed

This is Eli   Follow RSS
A blog about Eli. A blog about survival - and by that, I mean life! Eli, a boy living cystic fibrosis. We are all about living and ❤️ adventure. ...I write to shed light on life with CF - and mostly, that means writing about the game of survival called life. We do our best at wellness and nutrition to keep the tribe, and Eli, as healthy as possible. more

37. The Living, Breathing Wendy RSS Feed

The Living, Breathing Wendy Wisconsin, US   Follow RSS
A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
423 317 Mar 2015

38. Every Breath Means Hope RSS Feed

Every Breath Means Hope Sanford, North Carolina, US
everybreathmeanshope.blogspo..   Follow RSS
This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
275 Sep 2012

39. Lucky CF Mom | Possibilities RSS Feed

Lucky CF Mom | Possibilities Idaho, US   Follow RSS
I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!more
439 Feb 2011

40. I dream of Daisy RSS Feed

I dream of Daisy   Follow RSS
Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as... personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.more
217 59 146 Jun 2013

41. Cystic Fibrosis Guernsey RSS Feed

Cystic Fibrosis Guernsey UK   Follow RSS
Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surroundin...g CF have little or no way of sharing there ups and downs, their problems, we should help each other.more
178 156

42. But You Look So Well RSS Feed

But You Look So Well Oxford, England, UK   Follow RSS
Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing a...bout herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.more
1.6K 1 post / year May 2019

43. Becoming Chayil RSS Feed

Becoming Chayil   Follow RSS
Chayil is a beautiful Hebrew word that translates to strength, courage, and virtue, especially in the face of adversity, borne of closeness to and dep...endence on our Heavenly Father. My story, found throughout the pages of this blog, is one of redemption, forgiveness, and our Father's incomprehensible, incredible love. My story is my own, but chances are if you're reading this now, it's yours too... Or you want it to be. And it can! I created She is Chayil not only for myself but in hopes of using my storms to uplift and encourage others who might be going through similar things.more
Jan 2015

44. The Transplanted Dad RSS Feed

The Transplanted Dad US   Follow RSS
My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new di...rection it's headed in following my double lung transplantmore
129 Apr 2015


Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung trans...plant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day. more
96 38 Oct 2007

46. One Breath at a Time - Living with Cystic Fibrosis RSS Feed

One Breath at a Time - Living with Cystic Fibrosis   Follow RSS
A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog i...s to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is. more
Jan 2011

47. Michael Goodwin Sailing RSS Feed

Michael Goodwin Sailing michaelgoodwinsailing.blogsp..   Follow RSS
Hello, and welcome to my occasional blog about sailing adventures with friends. I aim to raise funds for the Cystic Fibrosis Trust through sponsorship..., so please consider making a donation to the trust via the link on this website to help us to beat this dreadful disease that limits the lives of so many young people. I do hope you enjoy reading my blog. more

48. RSS Feed   Follow RSS
Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick m...ucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.more
9 May 2005

49. Illness Inspired Words RSS Feed

Illness Inspired Words Oregon, US
illnessinspiredwords.blogspo..   Follow RSS
The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate. more
Jul 2009

50. The Journey of Faith RSS Feed

The Journey of Faith US   Follow RSS
Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with ...the fact that they have a child with CF. You will read about the fun and happy times as well as trying times. more
Feb 2010

51. The Unknown Cystic RSS Feed

The Unknown Cystic US   Follow RSS
Leaving a digital record for my family & virtual friends.
1.1K Feb 2010

52. Cat Boogies Dream | L Word RSS Feed

Cat Boogies Dream | L Word Raleigh, North Carolina, US   Follow RSS
I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant ...patient with cystic fibrosis.more
3 posts / year Mar 2010

53. Two Salty Boys RSS Feed

Two Salty Boys Chicago, Illinois, US   Follow RSS
Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.... more
Nov 2010

54. *Live*Laugh*Love*Breathe* RSS Feed

*Live*Laugh*Love*Breathe*   Follow RSS
Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
Jan 2011

55. Inhaling Hope RSS Feed

Inhaling Hope   Follow RSS
A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one that increases her challenges to these things. She has CF.more
Mar 2011

56. Blue-Eyed Breather RSS Feed

Blue-Eyed Breather blue-eyedbreather.blogspot.c..   Follow RSS
Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and abo...ut her walk with God.more
Jan 2012

57. Joyfully Breathing RSS Feed

Joyfully Breathing Texas, US
joyfullybreathing.wordpress...   Follow RSS
A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life. more
Nov 2013

58. The Race Marked Out For Me | Running with Purpose RSS Feed

The Race Marked Out For Me | Running with Purpose   Follow RSS
I want to write about my cf journey for a bunch of reasons to Connect, Share, Spread awareness and educate, Importance of Exercise, Inspire and encour...age, Thankfulness. Embracing life's journey with cystic fibrosis.more
Mar 2015

59. CF Is Not Forever RSS Feed

CF Is Not Forever   Follow RSS
Cystic Fibrosis is part of our family now on Earth, but we know that Cystic Fibrosis is not forever, but our family is!
Mar 2015

60. The Salty Cyster RSS Feed

The Salty Cyster   Follow RSS
Life with Cystic Fibrosis and other random thoughts along the way.
Apr 2015

61. Always Have Hope RSS Feed

Always Have Hope   Follow RSS
Following my life with Cystic fibrosis.
Sep 2014

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