Top 60 Cystic Fibrosis RSS Feeds
Cystic Fibrosis RSS Feeds
Here are 60 Best Cystic Fibrosis RSS Feeds you should follow in 2024. Subscribe in one place on FeedSpot Reader.
1. Cystic Fibrosis News Today RSS Feed
RSS Feed cysticfibrosisnewstoday.com/.. Follow RSS Blog cysticfibrosisnewstoday.com
Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.MORE Facebook Followers 22.7KTwitter Followers 5.2KInstagram Followers 8.9K Frequency 6 posts/week Since Apr 2014 Export RSS feeds list Get access to 250k active RSS feeds of news websites, blogs, magazines and podcasts with email contacts in 1500 niche categories. Get targeted RSS list in your niche at your fingertips. Email us the categories of RSS feeds you're interested in at anuj@feedspot.com . We'll share the list in an Excel spreadsheet or CSV format.Email us Export RSS List
2. Cystic Fibrosis Canada Blog RSS Feed
RSS Feed cysticfibrosis.ca/blog/feed Follow RSS Blog cysticfibrosis.ca
Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.MORE Facebook Followers 19.2KTwitter Followers 6.3KInstagram Followers 6.9K Frequency 1 post/week Since Apr 2016
3. Journal of Cystic Fibrosis RSS Feed
RSS Feed cysticfibrosisjournal.com/cu.. Follow RSS Blog cysticfibrosisjournal.com
The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.MORE Frequency 4 posts/week
4. Emily's Entourage Blog RSS Feed
RSS Feed emilysentourage.org/feed Follow RSS Blog emilysentourage.org
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.MORE Facebook Followers 9.4KTwitter Followers 2K Frequency 1 post/week
5. Living life breathlessly RSS Feed
RSS Feed livinglifebreathlessly.blogs.. Follow RSS Blog livinglifebreathlessly.blogspot.com
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Twitter Followers 1 Frequency 3 posts/year Since Dec 2007
6. Cystic Fibrosis New Zealand RSS Feed
RSS Feed Follow RSS Blog cfnz.org.nz
Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.MORE Facebook Followers 5.9K Frequency 2 posts/month
7. Continent Chasers RSS Feed
RSS Feed continentchasers.com/feed Follow RSS Blog continentchasers.com
Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.MORE Facebook Followers 2KTwitter Followers 1.8KInstagram Followers 1.5K Frequency 4 posts/year
8. Cody Dieruf Benefit Foundation RSS Feed
RSS Feed breathinisbelievin.org/feed Follow RSS Blog breathinisbelievin.org
The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.MORE Facebook Followers 2.1KTwitter Followers 7 Frequency 1 post/week
9. Tim Wotton RSS Feed
RSS Feed timwotton.wordpress.com/feed Follow RSS Blog timwotton.wordpress.com
Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting down to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.MORE Twitter Followers 881 Frequency 1 post/quarter Since Jan 2011
10. Cat Boogies Dream RSS Feed
RSS Feed catboogiesdream.blogspot.com.. Follow RSS Blog catboogiesdream.blogspot.com
I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant patient with cystic fibrosis.
Frequency 1 post/week Since Mar 2010
11. CF Happens RSS Feed
RSS Feed cfhappens.com/feed Follow RSS Blog cfhappens.com
I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
Twitter Followers 32 Frequency 1 post/week Since Oct 2013
12. Bright Hope RSS Feed
RSS Feed bvbrighthope.wordpress.com/feed Follow RSS Blog bvbrighthope.wordpress.com
Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!MORE Frequency 1 post/quarter Since Apr 2014
13. Breathe Bravely RSS Feed
RSS Feed breathebravely.blogspot.com/.. Follow RSS Blog breathebravely.blogspot.com
A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sharing my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.MORE Twitter Followers 223 Frequency 1 post/week Since Apr 2014
14. Cystic Fibrosis Trust RSS Feed
RSS Feed youtube.com/feeds/videos... Follow RSS Blog youtube.com
The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life.MORE Facebook Followers 88.5KTwitter Followers 27.5K Frequency 1 post/week Since Oct 2008
15. CF Roundtable Blog RSS Feed
RSS Feed cfroundtable.com/blog-feed.xml Follow RSS Blog cfroundtable.com
The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.MORE Facebook Followers 2.3KTwitter Followers 971 Frequency 4 posts/year Since Mar 2011
16. Cystic Fibrosis s Blog RSS Feed
RSS Feed cysticfibrosis.com/feed Follow RSS Blog cysticfibrosis.com
A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.MORE Facebook Followers 239.7KTwitter Followers 31.3K Frequency 1 post/year
17. The Frey Life RSS Feed
RSS Feed youtube.com/feeds/videos... Follow RSS Blog youtube.com
We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glimpse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!MORE Facebook Followers 112.1KTwitter Followers 6.9K Frequency 7 posts/year Since Mar 2014
18. Cystic Fibrosis Federation Australia RSS Feed
RSS Feed cysticfibrosis.org.au/all/bl.. Follow RSS Blog cysticfibrosis.org.au
Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.MORE Facebook Followers 11.6K
19. Claire's Place Foundation Blog RSS Feed
RSS Feed clairesplacefoundation.org/b.. Follow RSS Blog clairesplacefoundation.org
Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.MORE Facebook Followers 31.5KTwitter Followers 21.5KInstagram Followers 97.5K Since Jul 2011
20. Cystic Fibrosis Foundation Blog RSS Feed
RSS Feed cff.org/RssFeed.aspx?blogid=532 Follow RSS Blog cff.org/Blog
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.MORE Facebook Followers 239.7KTwitter Followers 31.3KInstagram Followers 61.9K
21. Tales of Citrus and Salt RSS Feed
RSS Feed teamddoes.blogspot.com/feeds.. Follow RSS Blog teamddoes.blogspot.com
When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child with CF.
Since Aug 2013
22. IV Solutions blogs RSS Feed
RSS Feed ivsolutions.com/blog/feed Follow RSS Blog maxor.com/news
IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.MORE Facebook Followers 2.3KTwitter Followers 16 Since Dec 2015
23. With Every Breath: My Life with Cystic Fibrosis RSS Feed
RSS Feed livewitheverybreath.wordpres.. Follow RSS Blog livewitheverybreath.wordpress.com
Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan.MORE Since Oct 2013
24. Love to Breathe RSS Feed
RSS Feed lovetobreathe.blogspot.com/f.. Follow RSS Blog lovetobreathe.blogspot.com
Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
Facebook Followers 10.2KTwitter Followers 1.6KInstagram Followers 13.3K Since Mar 2008
25. Behind the Smile of a Cystic RSS Feed
RSS Feed behindthesmileofacystic.blog.. Follow RSS Blog behindthesmileofacystic.blogspot.com
My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down!MORE Twitter Followers 191 Since Jan 2012
26. Cystic Fibrosis Kids RSS Feed
RSS Feed cfkids.org.uk/feed Follow RSS Blog cfkids.org.uk
CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.MORE Facebook Followers 1.5KInstagram Followers 270
27. Past the Point of No Return RSS Feed
RSS Feed tor-pastthepointofnoreturn.b.. Follow RSS Blog tor-pastthepointofnoreturn.blogspot.com
A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.MORE Twitter Followers 3.6K Since May 2005
28. 66 roses RSS Feed
RSS Feed 66roses.blogspot.com/feeds/p.. Follow RSS Blog 66roses.blogspot.com
Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.MORE Facebook Followers 391Twitter Followers 2.3K Since May 2010
29. The So What Life RSS Feed
RSS Feed thesowhatlife.com/blog/feed Follow RSS Blog thesowhatlife.com
A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fibrosis.
Facebook Followers 1.3K
30. The Living, Breathing Wendy RSS Feed
RSS Feed thelivingbreathingwendy.com/.. Follow RSS Blog thelivingbreathingwendy.com
A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
Facebook Followers 423Twitter Followers 317 Since Mar 2015
31. Every Breath Means Hope RSS Feed
RSS Feed everybreathmeanshope.blogspo.. Follow RSS Blog everybreathmeanshope.blogspot.com
This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
Twitter Followers 275 Since Sep 2012
32. Lucky CF Mom RSS Feed
RSS Feed luckycfmom.blogspot.com/feed.. Follow RSS Blog luckycfmom.blogspot.com
I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibrosis. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!MORE Twitter Followers 439 Since Feb 2011
33. I dream of Daisy RSS Feed
RSS Feed dream-of-daisy.blogspot.com/.. Follow RSS Blog dream-of-daisy.blogspot.com
Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.MORE Facebook Followers 217Twitter Followers 59Instagram Followers 146 Since Jun 2013
34. CF Stinks RSS Feed
RSS Feed cfstinks.com/feeds/posts/def.. Follow RSS Blog cfstinks.com
Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind.
Facebook Followers 210 Frequency 1 post/year Since Dec 2010
35. Cystic Fibrosis Guernsey Blog RSS Feed
RSS Feed cysticfibrosis.org.gg/feed Follow RSS Blog cysticfibrosis.org.gg
Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surrounding CF have little or no way of sharing there ups and downs, their problems, we should help each other.MORE Facebook Followers 178Twitter Followers 156
36. But You Look So Well RSS Feed
RSS Feed butyoulooksowell.com/feed Follow RSS Blog butyoulooksowell.com
Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing about herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.MORE Instagram Followers 1.6K Since May 2019
37. The Transplanted Dad RSS Feed
RSS Feed transplanteddad.blogspot.com.. Follow RSS Blog transplanteddad.blogspot.com
My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new direction it's headed in following my double lung transplantMORE Facebook Followers 129 Since Apr 2015
38. JAMIEBUG CF CEPACIA LUNG TRANSPLANT RSS Feed
RSS Feed jamiebug.blogspot.com/feeds/.. Follow RSS Blog jamiebug.blogspot.com
Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung transplant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day.MORE Facebook Followers 96Twitter Followers 38 Frequency 1 post/year Since Oct 2007
39. One Breath at a Time - Living with Cystic Fibrosis RSS Feed
RSS Feed kayla-onebreath.blogspot.com.. Follow RSS Blog kayla-onebreath.blogspot.com
A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog is to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is.MORE Since Jan 2011
40. Michael Goodwin Sailing RSS Feed
RSS Feed michaelgoodwinsailing.blogsp.. Follow RSS Blog michaelgoodwinsailing.blogspot.com
Hello, and welcome to my occasional blog about sailing adventures with friends. I aim to raise funds for the Cystic Fibrosis Trust through sponsorship, so please consider making a donation to the trust via the link on this website to help us to beat this dreadful disease that limits the lives of so many young people. I do hope you enjoy reading my blog.MORE Twitter Followers 16
41. SaltySouthpaw.com RSS Feed
RSS Feed saltysouthpaw.com/feeds/post.. Follow RSS Blog saltysouthpaw.com
Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick mucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.MORE Twitter Followers 9 Since May 2005
42. Illness Inspired Words RSS Feed
RSS Feed illnessinspiredwords.blogspo.. Follow RSS Blog illnessinspiredwords.blogspot.com
The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together unless we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate.MORE Since Jul 2009
43. The Journey of Faith RSS Feed
RSS Feed heleadsus.wordpress.com/feed Follow RSS Blog heleadsus.wordpress.com
Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with the fact that they have a child with CF. You will read about the fun and happy times as well as trying times.MORE Since Feb 2010
44. The Unknown Cystic RSS Feed
RSS Feed unknowncystic.com/feed Follow RSS Blog unknowncystic.com
Leaving a digital record for my family & virtual friends.
Twitter Followers 1.1K Since Feb 2010
45. Inspire; to breathe RSS Feed
RSS Feed suzannebrandsen.wordpress.co.. Follow RSS Blog suzannebrandsen.wordpress.com
Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics are more interesting than they sound.
Instagram Followers 588 Frequency 1 post/year Since Jul 2010
46. Two Salty Boys RSS Feed
RSS Feed twosaltyboys.blogspot.com/fe.. Follow RSS Blog twosaltyboys.blogspot.com
Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.
Since Nov 2010
47. *Live*Laugh*Love*Breathe* RSS Feed
RSS Feed howilivelaughlovewithcf.blog.. Follow RSS Blog howilivelaughlovewithcf.blogspot.com
Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
Since Jan 2011
48. Inhaling Hope RSS Feed
RSS Feed hopefulwithcf.blogspot.com/f.. Follow RSS Blog hopefulwithcf.blogspot.com
A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one thing that increases her challenges to these things. She has CF.MORE Since Mar 2011
49. Blue-Eyed Breather RSS Feed
RSS Feed blue-eyedbreather.blogspot.c.. Follow RSS Blog blue-eyedbreather.blogspot.com
Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and about her walk with God.
Since Jan 2012
50. Joyfully Breathing RSS Feed
RSS Feed joyfullybreathing.wordpress... Follow RSS Blog joyfullybreathing.wordpress.com
A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibrosis patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life.MORE Since Nov 2013
51. CF Is Not Forever RSS Feed
RSS Feed cfisnotforever.blogspot.com/.. Follow RSS Blog cfisnotforever.blogspot.com
Cystic Fibrosis is part of our family now on Earth, but we know that Cystic Fibrosis is not forever, but our family is!
Since Mar 2015
52. The Salty Cyster RSS Feed
RSS Feed thesaltycyster.blogspot.com/.. Follow RSS Blog thesaltycyster.blogspot.com
Life with Cystic Fibrosis and other random thoughts along the way.
Since Apr 2015
53. Always Have Hope RSS Feed
RSS Feed hollyrosanna.blogspot.com/fe.. Follow RSS Blog hollyrosanna.blogspot.com
Following my life with Cystic fibrosis.
Since Sep 2014